My niece Carmen

My dear friends,

I usually attempt to make this blog an expression of my thoughts rather than a vehicle for personal news or too-personal feelings. This morning I make a brief exception.

A year ago September, as all of you know, my 7-year-old niece Carmen was discovered to have had a large brain tumor. It was removed and found to have been a rare and aggressive type of brain cancer. Carmen spent the months from September to June going through radiation and chemotherapy. She lost her hair, she stopped eating, she stopped talking, she stopped walking, she nearly stopped living. It was heartbreaking for all of us and most painfully heartbreaking for her parents.

Happily, in June the treatment was over. Over the last few months, Carmen has been coming alive again. She is eating on her own. She is walking and running. She is talking and talking. She is back in school. She is a happy, active girl who turned 8 years old in August and was baptized at the beginning of September.

Her monthly MRIs have shown no return of the cancer. Until the one on Monday.

We have now been informed that another tumor is growing in her brain. In the next few weeks they will kill it with something referred to as a radiation knife. This, they say, is a treatment with mild effects on the patient. Dorothy said that the doctor said Carmen could get the treatment in the morning and be home and back at school in the afternoon! Wow! Then, if she will tolerate it, she will do some rounds of oral chemotherapy at home. But that is a decision to be finalized later since her parents do not want her to suffer as she did during the previous very aggressive treatment. They want to maintain her quality of life for as long as possible.

There is very little data on this type of cancer recurring. People with this kind of cancer just mostly die. The doctors say she will most likely die. The few statistics that are available indicate that her chances of 3 year survival are 20% at best. So they begin the cancer balancing act: treat as effectively as possible while still maintaining quality of life. Hoping to kill the cancer permanently without killing the person. Because apparently the fact that this tumor has begun growing so quickly after her months of intensive treatment means that the cancer will keep on coming back. They can kill it with quick and mild things like the radiation knife, but it will keep on coming back and hurting Carmen until finally they can't kill it again without killing her.

I am heartbroken at the thought of Carmen's further suffering, or worse, at the thought of losing her. And at the thoughts of what my brother and sister-in-law have already made it though and will go through now and in the near future. But, as my mom says, Carmen is herself. She is a fighter, a strong little girl. A miracle could happen! But the Lord, also, may decide to take her. We don't know. So I guess we'll do our best with what we have.

Anyway, as many of you often ask about Carmen, I thought I'd post it here. Everyone is always so kind and caring. One of the beautiful things about this type of thing is that it really throws into relief the essential goodness and kindness of people. I am amazed at how generous and kind people are. Strangers and friends work so hard for money, for support, for all kinds of help. It truly is amazing and wonderful.